CHD is the most common birth defect.
It kills more kids than cancer does.
It is terrifying when your kid has a heart defect.
The local group provides information and support to parents. They have regular meetings, a newsletter, a website, a yearly camp for kids, activities and picnics, etc. I have been getting the newsletter for years. I never really got involved because they met too far away for me, and besides, my son was doing so well. However, when W died, I asked them about donations. They gave the info, but they also--spread the word to their members. They sent a beautiful flower arrangement to the funeral, and a local lady came to the visitation and gave me a pin from their organization. Their president has been so very nice.
They are collecting funds to purchase books for a parent reference library. When you are a parent and worried about what to do for your child, information can be invaluable. So I am going to request that all funds donated in W's memory be used to purchase library materials.
Their website is here.